On My Mind and Heart

Though I have not posted anything lately (once again), I HAVE been on the computer a ton. What I have been doing is refreshing a particular blog site over and over again, sometimes probably near 100 times a day.

It is http://www.mycharmingkids.net/. This is the blog of a woman at my MOPS table who has a five month old son at Children's Hospital. He has been there now for two and a half weeks, and things are not going anywhere fast. During the first few days, it seemed as though he would surely die. It has been a heart-wrenching journey.

This little miracle baby was diagnosed with a very fast heart rate (SVT-supra ventricular tachycardia), with rhythms well over 250 beats per minute. At 20 weeks in utero, he was pronounced to surely die, as his heart became enlarged and he fell into heart failure. By the grace of God, he was born healthy, happy, and seemed to be cured on October 29.

During a bout of a respiratory virus (that all of us at my table and our kids contracted by taking our shift doing childcare at MOPS on March 19), he was thrown back into SVT and has remained there ever since, with only short bouts of relief. He has a stubborn case of it that appears to be unaffected by drugs of any kind. It is amazing how his little body is surviving this all for so long. They are now working with an extreme specialist in another part of the country who will be running care remotely. If things do not improve by next week, they will be forced to do surgery across the country which is VERY risky on an infant, though a sure-fire success on adults. The family also has 3 other small children, the oldest which just turned 4. We had the kids at our house on Friday, and had a delightful time (despite contracting a GI-respiratory illness from them that we are still getting through).

Please visit Jennifer's blog site...she has been gifted by God with beautiful words and praise throughout all and every circumstance......and pray, pray, pray for them!

(Picture above is Baby Stellan.....from Jennifer's blog)